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Community of Experience

We’re here for you, helping to support your wellbeing by providing peer support, a wealth of resources, and helpful signposting for parents of children and young people with a learning disability or autism.

 

Who's it for?

Young people up to the age of 25 with a learning disability, autism or both up to the age of 25 – plus their parents and carers.

How much does it cost?

Free

How to access the service

Contact us using the form below

About this service

The Community of Experiences builds upon the Humber and North Yorkshire Keyworker Service aims to improve personal wellbeing for parents and carers, and for those aged 14 to 25 with a learning disability, autism or both.

We offer peer support, resources and signposting, and regular activities and workshops.

We host get togethers where you can meet fellow parents and carers and share experiences over a cup of coffee or tea.

We also attend other events in the community where you can meet Kids staff and have a listening ear, as well as find out about our services and get signposting and support.

The service is delivered in Hull, East Riding, North Lincolnshire, North East Lincolnshire, North Yorkshire and York.

It has been and will continue to be created in co-production with Experts by Experience – people with a learning disability, autistic, or both, and their parents and/or carers.

If you wish to become involved please get in touch for further details by completing the form below.

Access the service

To access the service please click the button below for our Parent / Carer referral form. Complete the form and we’ll be in touch shortly.

Share your Experience

Help shape the Community of Experience by sharing your experience.

Tell us about your journey, some of the challenges you’ve faced, what could have helped you, and what you believe needs to change to improve lives.

There are separate forms for young people and parents / carers so just click your link below.

Useful Links

  • Humber and North Yorkshire Keyworker Service: Supports autistic people and people with a learning disability or both up to the age of 25, with the most complex needs and are inpatients in, or at risk of being admitted to, a mental health inpatient unit.
  • Cerebra: Guides offering expert advice on issues you may be facing from physical and mental health, dealing with social services, financial and legal affairs and education.
  • Contact: A helpful guide for families with disabled children.
  • Bringing Us Together: A proactive community for disabled children, young people and their families
  •  Challenging Behaviour Foundation: What is challenging behaviour and how can the Challenging Behaviour Foundation help?
  • Newbold Hope: Supporting parents and professionals to reduce violent, difficult and dangerous behaviour in children and young people with a disability and/or an additional need.
  • The PDA Society : The only specialist PDA charity in the UK. They are a small team, but all of them have a personal connection with PDA.
  • ARFID Awareness UK: Providing individuals, parents, carers and medical professionals with up-to-date relevant information, research and support

Contact this service

The best way to contact this service is to use the form below. Alternatively, you can reach us by phone or email. Our Facebook group is regularly updated with information about upcoming events.

Phone: 01482 467 540 
Email:
communityofexperience@kids.org.uk

We ask for this so we can make sure you are eligible for this service
Keep in touch
We would love to keep you updated about our vital work with disabled children. If you’d like to receive our regular newsletter and other occasional emails about our work please tick the box below.
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