I am married and a parent of two sons, 26 year old Anthony, and 19 year old John-Luke who is severely disabled and whose condition includes cerebral palsy, microcephaly, global delay, epilepsy, scoliosis, is PEG fed, in a wheelchair, can’t talk, and is registered blind.  Both sons love music.  

John-Luke has just gone through transition from children’s to adult services with ongoing needs, and it has been difficult, so I can understand parents in a similar situation.  I have worked in the local government and charity sector including for KIDS for 7 years as Information Officer, based in Dudley, working with parent carers and professionals, so I have a good understanding of many conditions and varying needs of disabled children and their families.

I am passionate about KIDS charity continuing to support parent carers, providing services, information and signposting, raising awareness of the needs of such families and making a real difference.