Personalisation case studies
These examples are drawn from families and service providers who have been involved in a range of experiences delivering personalised approaches and personal budgets from health, social care and education as well as exploring how organisations have worked with parent/carers and disabled children and young people to develop good practice to support the SEND reforms.
Note: some of the stories are from the original Individual Budgets Pilot for families of disabled children that ran from 2009 - 2011 in six local areas to test the concept of Individual (personal) budgets.
Case study A Lucy's story explains how her school working flexibly enabled Lucy to have a much more personalised curriculum.
Case study B This is an extract from an article used for a newsletter. It describes how Trafford Families are trying to pool their resources to create better services in Trafford.
Case study C Mimi has a rare genetic syndrome that means she has global developmental delay and special educational needs. She regularly attends Great Ormond Street Hospital and receives support from the local Community Nursing team.
Case study D Alexa is 4 and we have been in receipt of personal health budget money now for about a year. It has been very good for both our daughter, and for us as a family.
Case study E Darlington is a Special Educational Needs Pathfinder and is testing a number of new approaches.
Case study F Tom is 21 and has Lennox Gastaut Syndrome, is multi-sensory impaired, needs one to one support in all aspects of his life and has life-threatening epilepsy.
Case study G An Individual Service Fund enables people with additional support needs to experience the benefits of a direct payment without the added work and responsibility associated with being a direct employer.
Case study H The Jacobs family has two disabled children. Their dad Peter shares his thoughts about having a personal health budget.
Case study I Involving young people in developing services - Leaving Care Accommodation and Support Services, West Sussex County Council (WSCC).
Case study J Sammy is 8 and lives with her Dad and older brother, Jake. She goes to her local primary school.
Case study K Shropshire Families Information Service – embracing new technology and social media.
Case study L Jameel is a disabled teenager. His quality of life has been transformed since he left school in July 2008 with a personal budget.
Case study M Cambridgeshire County Council, working in collaboration with the Parent Partnership Service.
Case study N Christophe is 10 years old and has cerebral palsy which significantly affects his trunk, arms and legs, which in turn has impacted upon his mobility.
Case study O Early years and childcare settings in Suffolk, can directly request support for individual children (about whom they have concerns that may indicate SEND), from the local Families Information Service (FIS).
Case study P "My daughter, Maddy, is now 22. From age 11, she has received direct payments to pay for support from personal assistants. It started then because there was no after-school club/provision once she was in secondary school – it only existed in primary school."
Case study Q Newcastle City Council used the early intervention grant to support short breaks for disabled children by developing an inclusive network of cultural and sports providers.
Case study R I have been Sam’s PA for coming up to five years now, and it’s been an absolutely fantastic job and a lot of fun.
Case study S Gloucestershire County Council developed a commissioning strategy to transform support and outcomes for disabled children and young people back in 2007.
Case study T My name is Debi and I am originally from Manchester. I have an amazing son called Ryan who has a wicked sense of humour and the most contagious laugh you have ever heard.
Case study U Sheffield Parent Champions- supporting parents to navigate the Local Offer.
Case study V James is a young man of 14 who goes to mainstream school. His mum wanted to support his independence by enabling him to use his local leisure centre to go swimming on his own one night a week after school.
Case study W Trafford: moving from block contracts to personal budgets.
Case study X Jenny talks about her family’s experience of getting a personal health budgets for their daughter, Lisa.
Case study Y John A and John B are two young people from Darlington who left school a few years ago to go away to residential college for three years.
Case study Z Charlie's plan included the outcome of joining his local Cubs on a Friday night, with support from a personal assistant.