Does it matter having a diagnosis of my child's disability?

28 June 2013

It may be important to you as a parent to have a diagnosis, and also to your child so, as they get older, they can understand why they can't hear or walk or have an impairment.

However, for many practical purposes, it doesn't make any difference whether you have a diagnosis or not. This is because:

  • You have a right to have a social services assessment of your child's needs and as a parent or carer, your needs, whether your child has a named diagnosis or not.
  • Support should be tailored to your child's needs not based on the name of their condition. Similarly entitlement to receive benefits such as Disability Living Allowance is on the basis of the difficulties that your child has and support they require.
  • Your child is entitled to have an extra or different support to help them at school, if they need it. This does not depend on knowing the cause of their learning difficulties.
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